Post 533: Spoon theory and chronic illness

Reading this as I sit with the Mrs in the ER. Following “doctor’s orders” … “go to the ER”. I had hoped to avoid another trip this year.

I particularly liked the BINGO chart

weggieboy's blog

As a weggie – one of those people fated to live with Wegener’s granulomatosis (AKA GPA) for the rest of my life – I’ve had well-meaning people try to offer strategies and advice on how to deal with chronic illness. Yesterday, I came across this item posted on Facebook by a fellow weggie, Anne Wellings.

Spoon theory is something new to me. I understand it on some organic level, having experienced an illness that sometimes left me exhausted but not visibly sick, of being at an age where everyone else in my cohort can name an ache or pain for every one I experience, though theirs more likely than not aren’t signs of a body rejecting itself…. The “Chronic Illness BINGO” chart below covers a lot of the things others either said to me or implied in their effort to “deal” with my illness.
spoon theory

My all-time favorite, though, was by…

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